ASL video series about Usher syndrome

Posted on September 25, 2017 in Health Education, Physical Health | Short Link
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As many of you know, if you have ever searched the internet for information about Usher syndrome in American Sign Language (ASL), you won’t find much. You may find videos by individuals, sharing their personal stories but you won’t find a basic, educational series of videos about Usher syndrome all in one place. Right now, the Usher Syndrome Coalition (USC) is in the midst of our yearly “Own the Equinox” (OTE) campaign. The campaign’s goal is to raise awareness, worldwide, about Usher syndrome. Just as a marathon covers 26 miles, OTE runs for 26 days. This year, my friend and USC advisor Kevin Richmond and I decided to create 26 short, captioned ASL vlogs about Usher syndrome – one for every day of the campaign. Kevin, the presenter, is a native signer who has Usher 1B. His background as a professor at the University of VT makes him a natural presenter on these videos. To our knowledge, this is the first time that information of this type will be available in ASL, so we wanted you to know about this new resource.

Response from the community has been terrific. Although we only started posting a few weeks ago, most of the videos have at least several hundred views. Video #11, Kevin’s Story, has been viewed more than 27,000 times! All videos are captioned with transcripts on the Usher Coalition FB page as well as our YouTube Channel. Here are the topics we’ve already posted:

Day 1, August 22 – What is Own the Equinox? https://youtu.be/c3MFFonEtv0

Day 2, August 23 – What is the Usher Syndrome Coalition? https://youtu.be/yQGEPM_LzZ0

Day 3. August 24 – What is Usher Syndrome? https://youtu.be/rNyhakh-wxA

Day 4. August 25 – What is Retinitis Pigmentosa? https://youtu.be/RgTisW644UA

Day 5. August 26 – Usher type 1 https://youtu.be/kVVO8IrfaWg

Day 6. August 27 – Usher type 2 https://youtu.be/SzrK7yV_T8o

Day 7. August 28 – Usher type 3 https://youtu.be/1XLcwSn0BuY

Day 8. August 29 – How do you know if you have Usher syndrome? https://youtu.be/jIwNo2hz-i4

Day 9. August 30 – The Genetics of Usher syndrome https://youtu.be/yvv9JiD4vgo

Day 10. August 31 – The USH Trust registry https://youtu.be/IlxH_-LR3ic

Day 11. September 1 – Kevin’s Story https://youtu.be/xVC–WHU9LU

Day 12. September 2 – Phenotypes and Genotypes https://youtu.be/KGqpqcq9dm4 

Day 13. September 3 – The Research Process https://youtu.be/dKY0aU6mYHs

Day 14. September 4 – How Viruses can help – https://youtu.be/E_j2C0nLkxc

Day 15. September 5 – Treatments, Cures and Your Identity https://youtu.be/-MEWDXwhhVc

Day 16. September 6 – Induced Pluripotent Stem Cells https://youtu.be/llmnhjL5CX0

Day 17. September 7 – School age kids with Usher syndrome https://youtu.be/WEnGMUIGjQY

Day 18. September 8 – Higher Ed and Students with Usher syndrome https://youtu.be/0VTJqN0L7zk

Day 19. September 9 – Employment https://youtu.be/IZrTs70Z2ZU

Day 20. September 10 – Diversity https://youtu.be/IW8uOPMBCMs

Day 21. September 11 – Communication https://youtu.be/ToifKySSnVI


If you would like to learn more about this topic or if you have resources to offer, please contact us.


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